1. What services are provided by your hospital for patients with Dravet syndrome?
a. Treatment initiation
b. Titration of dose (consider both starting and maintenance treatment)
c. Monitoring (incl. echocardiographies, liver function tests, etc.)
d. Review of clinical presentations (frequency, duration)
e. On-going prescription of treatments
f. Completing the Blueteq forms
g. Other ….
2. If services are not provided at your hospital
a. Where are patients referred to?
b. What services do they receive at the other location (see above list for examples)?
