Worster Drought Syndrome is a rare/ultra-rare disease that in 2019, Orphanet estimates to have a European prevalence of 3.7 cases per 100,000 population1.
There is not a specific ICD 10 code available to attribute to a WDS diagnosis, as a form of cerebral palsy (ICD10 G80). WDS is then included in the sub categories C80.8 (Other Cerebral Palsy) or C80.9 (Cerebral Palsy Unspecified)
1. A primary diagnosis of Worster Drought over the last 3 years
2. Worster Drought prevalence (all ages) under your care
3. No of patients diagnosed with Congenital suprabulbar palsy/paresis
4. No of patients diagnosed with Congenital pseudobulbar palsy/paresis
5. No of patients diagnosed with bilateral perisylvian polymicrogyria
6. No of patients diagnosed with foix-chavany-marie syndrome
7. How many patients have had a diagnosis of WDS which has been re coded: to what disease/ICD10 code?
8. How many patients have been re coded to WDS
9. Any specific specialities/services/pathways/recommendations provided for WDS patients
