All questions are shown as received by the Trust.
Many thanks for your response to my Freedom of Information request received today 27th August 2024 and the information contained within it.
Please could you provide me with further information regarding adult services if possible requested under Questions 4 and 5 of the original request.
4. To which individual specialty or specialties are PoTS patients referred for investigation, diagnosis and longer-term management? e.g., cardiology, neurology, care of the elderly.
You have responded to this question in relation to paediatric referrals but not in relation to adults. Please could you ask your cardiology department if they accept referrals of patients with suspected or diagnosed PoTS.
5. Within your Trust do adult patients diagnosed with PoTS have access to a specialised PoTS clinic or service for treatment by dedicated clinicians with an interest/expertise in the condition?
You have responded to this question for children but you have not advised whether the Trust provides a specialist clinic or service for adults as part of the Trust’s portfolio of services. I suspect that no dedicated service is in place but it would be helpful if your cardiologists could advise whether they care for adult patients with suspected or diagnosed PoTS or refer patients back to their GP or refer on to a tertiary service elsewhere. If so, which service? London possibly?