For the period 1 January 2015 to 31st December 2015 (or the most recent full 12 month period if more recent data is available) :

A. The number of patients diagnosed with genetic haemochromatosis who have been provided with genetic testing for haemochromatosis and/or genetic counselling in relation to their condition.

B. The number of marriage or civil partners of patients diagnosed with genetic haemochromatosis who have been provided with genetic testing for haemochromatosis and/or genetic counselling in relation to their partners’ condition.

C. The number of siblings of patients diagnosed with genetic haemochromatosis who have been provided with genetic testing for haemochromatosis and/or genetic counselling in relation to their sibling’s condition.

D. A copy of your protocol or pathway applicable to the provision of genetic testing/counselling for families of patients diagnosed with genetic haemochromatosis.

Download response Genetic haemochromatosis 1 January 2015 to 31st December 2015 111116